hospitalbed
Nov. 05.

Waffle Wednesday: A Frustrating Hospital Update

ww-bedthAnyone who has been following me on Facebook or Twitter, or who has been reading Robyn Rants and Raves for a while knows about my adventures in healthcare, and mid to late October saw another chapter written in the ongoing saga. Unfortunately it has not been a good chapter.

If you didn’t already know, I spent 5 weeks in hospital late last year, after discovering a problem with my kidneys and bladder (we’re rapidly approaching the 1 year anniversary). The bladder has been sorted, and in March we discovered the cause of the kidney problem – a polyp causing an obstruction. It was minor, and they were willing to wait and take a look at it again in July.

July turned in to October after 4 cancellations, but in mid October they finally got me back in to look at things again, and it had gotten worse. It is now a more serious problem, as it is completely obstructing the kidney.

The doctors suddenly decided that things must be done. Within an hour of getting home from the hospital that day I had a phone call giving me a date just on the opposite side of the weekend to bring me back in. That didn’t happen, but it did happen that week, on the Friday, for urgent intervention with the aim of protecting the kidney. Even that didn’t go perfectly. They were able to complete one part, but not the other. Cue a weekend of sitting in a room doing nothing. A LONG long weekend of doing nothing over the bank holiday. On the Tuesday they decided that yes they wanted to try again, and did try the next day. And again it didn’t work out. So they sent me home, with the aim of trying again next week.

So, the current plan is to being me back in on Tuesday, with the aim of trying yet again on Wednesday. After that, I have no idea what will happen.

This is where things get frustrating. It is rapidly approaching a year since this all began. A year where I have had to put things on hold. A year of not being able to plan ahead, not knowing when the hospital would want me again.

Then there is the lack of communication. I have been taking quite an interest in my treatment. I find it helps to have some idea of what has been done, and what still needs to be done. The medical team this time around seem a little unwilling to actually discuss things, and in the most recent stay, I didn’t speak to my consultant, even to have him say hello.

And of course there is the feeling of going backwards. These interventions have been done before, deemed to no longer be needed, and taken out. Now we are putting them back in. This doesn’t seem any closer to a resolution.

To know we are getting closer to the job finally being done, to being able to get my life back on track is all I want. Physically I am better than I was this time last year. I can put up with the poking and prodding and sticking things in me to try and do something. Mentally, however, I am suffering. It is not easy being unwell. If you haven’t experienced it, I hope you never do. If you have, this probably makes too much sense.

My GP today said something to help, a little bit of good news to remember. At least the polyp is benign.

That’s it. Stay optimistic. Keep the chin up. I’ll get through it eventually.

Robyn

P.S. This is also the reason for my sporadic posting in the past couple of weeks. Trying to juggle getting things ready for the hospital, being in there and blogging is difficult. I’ll try to do what I can though.

By Robyn | Posted in All About Me, Thoughts, Waffle Wednesday | Post a comment or leave a trackback: Trackback URL.

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Go on, talk to me. I don't bite!

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